Saturday, April 23, 2022

Introduction!

Hello there! Thank you for your interest in my new blog, "Rare Reflections". 

My name is Jonna Crocker, and I am a high school senior from New Jersey. 

In 2015, my sister and I started a nonprofit organization called Fighting H.A.R.D. Foundation with the mission of helping kids with rare diseases and chronic illnesses to not feel alone. To date, we financially assist over 40 families in our local community and send care packages and support to kids all over the country! 

Advocating for rare diseases is something I am extremely passionate about, so when I was tasked with creating a project highlighting a social issue as a part of my philosophy course, I knew that it had to be about the rare disease journey. Thus, I created a series of blogs titled "Inequalities for Rare Disease Patients". Throughout the course of my next 6 blog posts, it is my goal to educate you about the injustices in the rare disease community, why it may be important to you, and how you can help to make a difference! 


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